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Everyone benefits when patients and their relatives actively participate in the research process. The DZPG has various committees for this purpose. They can get involved in individual projects even if they do not belong to any of the DZPG's participation committees.
Committees
Trialogical Partner Site Board
Each DZPG site has a Trialogical Partner Site Board that meets regularly, either virtually or in person. In this committee, patients, families, and researchers exchange ideas, prepare topics, and organize meetings, projects, and other opportunities for participation.
If you are interested in joining a local Trialogical Partner Site Board, please get in touch with the relevant coordinators:
Berlin-Potsdam site: Silke Lipinski – silke.lipinski@hu-berlin.de
Bochum-Marburg site: Christina Bartnick – christina.bartnick@rub.de
Halle-Jena-Magdeburg site: Katja Lind – katja.lind@med.uni-jena.de
and Anne Strehlow – anne.strehlow@med.ovgu.de
Mannheim-Heidelberg-Ulm site: Sina Klein – sina.klein@zi-mannheim.de
Munich-Augsburg site: Armin Kauf – armin.kauf@mri.tum.de
Tübingen site: Ulrike Sünkel – ulrike.suenkel@med.uni-tuebingen.de
The Central Trialogical Board consists of up to two patient representatives, relatives, and researchers per partner site and comprises a maximum of 36 people in total. This Board has been involved in the development of the DZPG concept from the very beginning and participates in all infrastructures, research projects, and working groups.
The Central Trialogical Board aims to shape the path to mental health in a patient-oriented and patient-sensitive way, to overcome the stigmatization of mental disorders, and to promote the participation of those affected. Access and care in the field of mental health should be specifically facilitated and improved. If new insights into early diagnosis and treatment are brought into the lives of people with mental disorders and their families, their lives can be significantly improved.
Contact
Maria Haun
maria.haun@dzpg.org
The Center for PPI supports the active participation of experts by experience in the relevant local and central decision-making bodies. At the six partner sites, representatives have been appointed who, above all, coordinate the work of the local Trialogical Partner Site Boards on site, act as contact persons for participatory research, and ensure the quality of the participatory elements of the DZPG projects. In addition, a cross-site coordination office supports the work of the Central Trialogical Board.
Contact
Silke Lipinski
silke.lipinski@hu-berlin.de
Like adults, children have the right to freedom of expression and information and to the best possible health. Children are reliable sources of information when it comes to their well-being and are far too often underestimated as experts on mental health. At the DZPG, the perspectives of children and young people on the topic of mental health are systematically and structurally incorporated from the outset. In a children and youth council, children and young people are involved in all phases of research on mental health. As experts on their age group, they are involved from the outset in identifying topics, research projects, and infrastructure so that they have a voice, can express their opinions, and contribute their perspectives. The aim is to work together to ensure that more knowledge about mental health and mental disorders is imparted in relevant areas of life, such as daycare, kindergarten, and school (mental health literacy). Preventive and intervention measures to promote mental health are developed in a participatory manner together with children and young people.
Contact
Children and Youth Council of the DZPG
dzpg@uni-marburg.de
Current projects
For the first time in Germany, the KOMMIT project, in cooperation with the DZPG, is collecting the needs and priorities of people with mental health problems and their relatives for the research agenda. The first step will be a three-week online dialogue on the website kommit-deutschland.de, where people with mental disorders can contribute their issues. The results will be used in a multi-stage process to develop a Mental Health Research Compass. It will help scientists to tailor their research topics more closely to the needs of people living with mental health disorders. The project was initiated by patients and their relatives, who are organized in the "Central Trialogical Board" of the DZPG.
Following and in collaboration with KOMMIT, KOMMIT-Kids is a research project on mental health that actively involves children and adolescents aged 6 to 17 in shaping research questions. The project is developing the Research Compass for Kids, which gathers the most important research questions from the perspective of children and adolescents. These research questions will serve as a foundation for future research at the German Center for Mental Health, the German Center for Child and Adolescent Health, and beyond.
Specific information on opportunities for involvement will be available here shortly.
BASTA
BASTA ("Alliance for Mentally Ill People", in German “Bündnis für psychisch erkrankte Menschen”) has been running a successful anti-stigma project for more than 20 years, reaching about 70 school classes per year in Munich and Rosenheim alone. The project is designed for classes from the 9th grade and all types of schools. The participating classes meet two members of the organization: one who talks about his or her life with a mental disorder, accompanied by a therapist who moderates and provides technical support.
The intervention has received good feedback from teachers, students, professionals, and patients who have participated. A scientific evaluation will determine whether such a program is effective in reducing stigma and can contribute to improving knowledge about mental disorders. This will allow the program to be developed for other population groups in the future.
You will find specific information on participation opportunities here shortly.
Mental Disorders and Parenthood
The DZPG partner site Berlin-Potsdam is currently developing an app for parents with mental health problems, for whom parenthood is particularly challenging due to their own mental health problems. The content of the app is intended to help parents better cope with the challenges of parent-child interaction and to strengthen their mental health.
The research project brings together the perspectives of patients, relatives, professionals, and scientists. Together with experts in the field, we will work out what content is important, how parents should be addressed, and what the training should be called. As an expert in the field, you can be an active part of the development process and help ensure that the digital training is truly relevant and interesting for parents. Online events are held at regular intervals, during which we develop and test the content of the app.
Contact
If you would like to find out more about the project and/or are interested in participating as an experience expert, please contact:
Dr. Charlotte Rosenbach
c.rosenbach@fu-berlin.de
Caroline Seiferth
c.seiferth@fu-berlin.de